General:
Childhood Cancers at the National Cancer Institute
For children having therapy:
The website "Chemo to the Rescue" by Mary Brent Knutsson describes her daughter's recent treatment for leukemia and features an excellent book she has designed for children undergoing leukemia treatment.
Here are some links to associations that help to brighten the lives of children with cancer:
There are also summer camps where kids with cancer can spend time having fun. In BC we have Camp Goodtimes. Here's the link :
Support for parents:
Here's the link to a Foundation set up by one family whose brave little girl died of her tumor. This foundation was created with the express purpose of helping other families who have to cope with childhood cancer:
The Candlelighters Childhood Cancer Foundation provides essential services and support for children with cancer and their families. They also provide support for bereaved families.
Candlelighters Childhood Cancer Foundation
Here is a link to the BC Childhood Cancer Parents Association created to support families and children with cancer in British Columbia.
B.C. Childhood Cancer Parents Association
Support for survivors:
The Childhood Cancer Survivors Society of British Columbia
These guidelines were developed as a collaborative effort of the Nursing Discipline and the Late Effects Committee and are maintained and updated by the Children’s Oncology Group’s Long-Term Follow-Up Guidelines Core Committee and its associated Task Forces.
Cancer Survivors Network: www.acscsn.org
American Society of Clinical Oncology (ASCO) Survivorship
National Cancer Institute: Late Effects of Treatment for Childhood Cancer
National Coalition for Cancer Survivorship: www.canceradvocacy.org
Foundations to generate research funding:
The website Hannah's Heroes is named after a little girl called Hannah Hatlen who died of a brain stem glioma. Their aim is to raise funds for medical research:
International internet resources:
American Cancer Society: www.cancer.org
Brain Tumour Foundation for Children, Inc: www.braintumorkids.org
Brain Tumour Foundation of Canada: www.braintumour.ca
Association of Cancer Online Resources: www.acor.org
Cancer Care. Inc: www.cancercare.org
Cancer Hope Network: www.cancerhopenetwork.org
Candlelighters Childhood Cancer Foundation: www.candlelighters.org
Caregiver.com: www.caregiver.com
Childhood Brain Tumor Foundation: www.childhoodbraintumor.org
Children’s Brain Tumor Foundation: www.cbtf.org
Children’s Hospice International: www.chionline.org
CureSearch: www.curesearch.org
Family Caregiver Alliance: www.caregiver.org
Gilda’s Club Worldwide: www.gildasclub.org
Group Loop: www.grouploop.org
The Healing Exchange Brain Trust: www.braintrust.org
The International Brain Tumour Alliance: www.theibta.org
International Charter of Rights for young people with cancer
Lance Armstrong Foundation: www.livestrong.org
National Cancer Institute: www.cancer.gov
National Children’s Cancer Society: www.nationalchildrenscancersociety.org
Pediatric Brain Tumor Foundation of the United States: www.pbtfus.org
Pediatric Low-Grade Astroctyoma Foundation: www.fightplga.org
People Living with Cancer: www.plwc.org
Pituitary Network Association: www.pituitary.org
The Wellness Community: www.thewellnesscommunity.org
